tag:blogger.com,1999:blog-3890252727529257852.post674459145349340240..comments2023-09-17T03:32:45.949-07:00Comments on autism sucks: Give Us a BreakTina@ SendChocolateNowhttp://www.blogger.com/profile/04756286418593037399noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-3890252727529257852.post-44490599439845557382010-11-04T16:05:24.278-07:002010-11-04T16:05:24.278-07:00Amazing post... You are not alone. My sxon is verb...Amazing post... You are not alone. My sxon is verbal but still cant express himself when he really needs to and he is very aggressive. I also have other children whom feel left out and set aside. I am so sorry that you are going through this but I hope that you know that there are others and you can always drop me an email.Anonymoushttps://www.blogger.com/profile/05956218591563648525noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-40398860289258107392010-08-25T14:45:17.064-07:002010-08-25T14:45:17.064-07:00Am I supposed to have a parenting plan?? Many days...Am I supposed to have a parenting plan?? Many days, it is enough just to get the kids get through the day alive and fed. We're right there with you, at least in spirit. Your daughter may want more than you can give sometimes but she is going to grow up knowing patience, love and respect for others, especially those with special needs.Wantapeanuthttps://www.blogger.com/profile/11993949583915924482noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-44000645852659444012010-08-25T12:04:52.522-07:002010-08-25T12:04:52.522-07:00OMG This is MY life. Glad I found this blog!OMG This is MY life. Glad I found this blog!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-85445003020327919632010-08-22T17:20:26.721-07:002010-08-22T17:20:26.721-07:00That was just awesome. I know you didn't mean...That was just awesome. I know you didn't mean for me to enjoy it----and I didn't, not in that way. But man! You so get it. I can't give you a ton of advice, because obviously you are doing better with your situation than I would in it. But about the shoes. I've resorted to buying the shoes when I am alone, bringing them home... I have to have them out for a week or so, just so he can see what they look like, get used to seeing them. Then after a week, he magically can't find the old shoes, so has to wear the new ones. I've never gotten them in various sizes, but looking back, it may have helped to just have the same shoes, like his whole childhood. Before I started doing this, shoe shopping with him and his sister was THE WORST.<br /><br />Thanks for writing. I agree with having some type of care for your son, and some type of care for your daughter, and (the impossible) care for yourself. Isolation is the hardest part of this life. Just breath. Another person would really help, even if it was an older teenage girl, or college student who could have a regular shift or 2 per week. Or trading with another mom.Tami Lowe Whitinghttps://www.blogger.com/profile/07149495501759699897noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-24717256506879266392010-08-22T10:18:25.529-07:002010-08-22T10:18:25.529-07:00I am heartened by the way your daughter responds t...I am heartened by the way your daughter responds to you. Clearly you have spoken to her with great patience and given her some sort of explanation for the delays; essentially she sounds like the most reasonable of parents herself (I take it that she is quoting you) and there is nothing here to admonish you for. Hardship builds character, and she sounds like she has a strong sense of herself. You're doing your best. She will grow up and eventually gain some understanding of your sacrifices, so don't beat yourself up. Just take it one day at a time. You also might, for your own peace of mind, bring your child to the local police station and tell them your fears about the possibility of him trying to get away from you. With an explanation of his autism and a picture on file, and perhaps a contact within the department, you would be able to get any search started much more quickly, if your fears were realized. (I don't think that they would consider it an interest of child protection services, but maybe your local autism chapter could help you to find some regular respite. It sounds like you are blaming yourself for things you have no control over (your genes) and this drags you down when you need all your energy just to keep up. If you do get some regular respite, I would encourage you to take up an exercise that would also build your endurance, so that your fitness is enhanced to its optimum level. So instead of isolating yourself out of shame, surround yourself with an invisible team, other people with kids on the spectrum who can back you up when you are expected to be two places at once. Is there a parent in your daughter's class who lives near you and would be able to drive her home if you drop her off? Don't assume that, just because some of the people you meet have never been exposed to autism, that they would not help if they knew how.eaucoinhttps://www.blogger.com/profile/03572252291115673745noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-87112229121040966102010-08-22T07:29:27.794-07:002010-08-22T07:29:27.794-07:00Is there any chance at all that you have a family ...Is there any chance at all that you have a family member or a good friend who could watch your son for an hour or two? Any chance that of time alone together (even just once a month)? I cannot imagine how hard it must be to do everything you are doing as a single parent, but I can say that my middle child who has some of your daughters same behaviors has been helped a lot by some alone time with a parent. Good luck!Annahttps://www.blogger.com/profile/14121943812874333831noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-61839343776751764522010-08-22T05:08:39.444-07:002010-08-22T05:08:39.444-07:00This reminded me so much of my daughter. I really ...This reminded me so much of my daughter. I really can relate to your post.Jenhttps://www.blogger.com/profile/11909098646294265399noreply@blogger.com