tag:blogger.com,1999:blog-3890252727529257852.post3518607647382749273..comments2023-09-17T03:32:45.949-07:00Comments on autism sucks: Supermom vs. AutismTina@ SendChocolateNowhttp://www.blogger.com/profile/04756286418593037399noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3890252727529257852.post-25724268199955059962010-03-23T02:04:41.892-07:002010-03-23T02:04:41.892-07:00Fantastic. It is as if you are my voice.
This blo...Fantastic. It is as if you are my voice.<br /><br />This blog is amazing, wish I'd found it sooner!Madmotherhttps://www.blogger.com/profile/18189416781378632230noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-43799630502769491312008-07-03T18:52:00.000-07:002008-07-03T18:52:00.000-07:00My standard response anymore is "Two has got nothi...My standard response anymore is "Two has got nothing on FOUR" then I get some sympathy. Granted it probably isn't the best way to deal, but if I yelled "give me a break, he has AUTISM" they'd probably ban me from coming back. Good job on keeping tuned in and keeping it together. I think we need to start a grocery/mass market chain with DAYCARE inside. But only for special needs kids. Because us moms with those kids really do need a chance to shop in peace without someone lecturing us on WHICH apples to buy and what color pants are okay!Nauntie Lushhttps://www.blogger.com/profile/02602913238961361850noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-79938397980838533542008-07-03T05:12:00.000-07:002008-07-03T05:12:00.000-07:00I can soooo relate to this!! I don't try to educa...I can soooo relate to this!! I don't try to educate every person I come into contact with either (who has the energy for that and it's not always an appropriate time - sometimes we just need to get our groceries and go!) but if I notice weird looks I try to show through my actions that this is "normal" for us. In other words, nothing to see here, folks, move along! lol<BR/><BR/>I've had to retrieve my sons from those kind of conversations too, I remember one in particular where Dominik (super friendly) went up to another family eating lunch at Target to say hello and then started into his monologue introducing his entire family (even the ones who weren't there, it was just me and my twins), telling them everyone's birthday, age, gender (I'm a boy, my brother is a boy too), where they go to school, what grade they're in, what they like about school... Dawson joined him and started in with his own monologue, talking over him (they're still learning that no one can hear either of them if they talk at the same time!). I finally managed to gently guide the boys back to our table so they could eat :).<BR/><BR/>I can totally relate to the part about not wanting to believe your younger child was on the spectrum too - I felt the same way when we started noticing signs in my youngest. Surely he couldn't have autism because he was so different from his brothers... but after a while it was painfully obvious and an evaluation confirmed it.<BR/><BR/>What's kind of funny is that with my older boys being relatively high functioning (and having come a long way since they were dx'd at age 3) they ask a lot of questions about Wyatt - why doesn't he talk much, why does he ignore them when they talk to him, etc. I told them to keep talking to him, because he can still hear them even if he doesn't show it, and he knows they love him. They're really sweet, they get just as excited as I do when he says actual words :).<BR/><BR/>Guess I've rambled on enough - just wanted to say thanks and you're not alone!danettehttps://www.blogger.com/profile/15555927841950877805noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-39935629071847656052008-07-02T21:07:00.000-07:002008-07-02T21:07:00.000-07:00I just found your blog through FriendFeed and Twit...I just found your blog through FriendFeed and Twitter. My 11yo son is an Aspie (also has Tourette Syndrome). We started homeschooling this past year due to less than ideal circumstances. I also have a NT daughter, although I'd guess she leans toward OCD. Thank you for sharing such a raw moment in the parenting of our special kids. I wish there was some way to do a mind dump with strangers sometimes--impart what we know without having to take the time to explain the journey we've been on to learn it.califmomhttps://www.blogger.com/profile/10221199345482393180noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-86534569794840229602008-07-02T12:50:00.000-07:002008-07-02T12:50:00.000-07:00Thank you all for the comments! If anyone wants to...Thank you all for the comments! If anyone wants to author a post, let me know, I will be glad to add you as an author.<BR/><BR/>lisa: I usually ramble at my other blog, <A HREF="http://casadecruz.blogspot.com" REL="nofollow">Send Chocolate</A>.. much of the material there is just like this. Check it out if you get a chance. <BR/><BR/>becky: I am seriously laughing. I wouldn't have had the guts to say that, but I would have thought it, I am sure.<BR/><BR/>rainmom: I am thrilled to meet you. Please check out my other blog, Send Chocolate. The link is above...that's where I usually write.Tina@ SendChocolateNowhttps://www.blogger.com/profile/04756286418593037399noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-21333982443825831672008-07-02T09:27:00.000-07:002008-07-02T09:27:00.000-07:00Hi, basically, you just summed up my day- right do...Hi, basically, you just summed up my day- right down to talking to the person behind us in line about Indiana Jones and the lego game. <BR/><BR/>I just found a book "Parenting a child with Asperger Syndrome" by Brenda Boyd. I am still relatively new to the diagnosis and the book is helping a lot. Not really telling me stuff that is 100% new to me but it offers some tips that I hadn't thought of and most of all it explains stuff in a way that I can pass on to others- like my semi serious boyfriend of 2 years who thinks ADD (that he has) and Apergers can be treated the same way. OR the teachers that think that they get it but don't. <BR/><BR/>I am so going to buy this book for every teacher and aide Joey has next year. <BR/><BR/>I love my boys so much (one on the spectrum and one is not) and I just want to hug them, teach them, and tell them to ignore anyone that makes us feel like crap. I second shoving a cactus up the butt of random people, no one knows my son better than I do and while he needs to learn some things, he has learned so much already...and he could kick their butt in dinosaur facts...<BR/><BR/>yep, I ramble. <BR/><BR/>EileEilehttps://www.blogger.com/profile/02729929797052818512noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-15344058956191128672008-07-01T15:13:00.000-07:002008-07-01T15:13:00.000-07:00I think you just summed up my world!Hi! I'm Becky'...I think you just summed up my world!<BR/>Hi! I'm Becky's sister in-law "Rainmom". I'm really struggling with my almost 10 year old son who was diagnosed PDD at age 4. I've always suspected Aspie and am now 98% sure that should be his diagnosis. He is going to be re-evaluated. I am working on getting his IEP back. I am looking for speech therapy, OT, and intensive social skills therapy. <BR/><BR/>It's a tough climb on my roller coaster, but it's blogs like yours that remind me that without my roller coaster, where would I be? There's no where else I'd rather be. This is where I am supposed to be. But it took a long time for me to figure that out!<BR/><BR/>I am a big advocate (I am the resource committee chair for the Kansas City Autism speaks walk)and just joined KCAL (kansas coalition for autism legislation). But you just nailed it. I can't always be an advocate. I am a mom and that's my job. That's my blessing.<BR/><BR/>OK - done babbling. Thanks to Becky for sending this to me as I just had a suck ass time at the grocery store today!rainmomhttps://www.blogger.com/profile/14879440849897122200noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-91198074408726546242008-07-01T10:42:00.000-07:002008-07-01T10:42:00.000-07:00I fell in love with Faith awhile ago, I think I ju...I fell in love with Faith awhile ago, I think I just fell in love with you too!<BR/><BR/>I don't like shopping with Josh. Sometimes its fine, sometimes its NOT so fine.<BR/><BR/>A few trips ago the checker said "Looks like someone needs a little bit of discipline". As I walked away I turned around and mouthed to him "looks like someone needs a cactus shoved up his ass".<BR/><BR/>Yeah, I hate shopping.**https://www.blogger.com/profile/08014182459282982937noreply@blogger.comtag:blogger.com,1999:blog-3890252727529257852.post-22840694270064681512008-07-01T07:54:00.000-07:002008-07-01T07:54:00.000-07:00I'm new to your blog... but as a parent with one o...I'm new to your blog... but as a parent with one on/one off the spectrum, it sounds like your grocery store adventures are about as typical as can be! some days the NT kids keep it together; other days they whine like hell... as you said, "Kids!"<BR/><BR/>To be quite honest, I have NEVER attempted to educate the general public about autism in a store, etc. After all, they (and we) are in the grocery store/Target/library to do our business whatever it may be; so I figure my job is to get our business done and help my kids figure out how to manage in that environment. Like you, I don't need "poor you" commiseration - and I know that every kid will be different, so it's hard to provide "useful" autism info to the grocery store clerk...<BR/><BR/>Thanks for your thoughts!<BR/><BR/>Lisa (www.autism.about.com)Lisa Jo Rudyhttps://www.blogger.com/profile/07517170138121456391noreply@blogger.com