Showing posts with label discussion. Show all posts
Showing posts with label discussion. Show all posts

Wednesday, May 12, 2010

So, What Do You Say About Your Life?

A lot of times, I read and hear directly from families affected by autism that people just don't understand. I've uttered this myself, even to people close to me in my life. It's the truth. So my questions for discussion are:

How do you explain what it's like being an a parent/family member/guardian of an autistic child?

How do you help people understand? What kinds of illustrations do you give, analogies do you form, comparisons do you come up with?

Do you ever run through a typical day with someone who is learning about your life, whether they are close to you or not? What is the reaction? What is the response from them?

My take? I explain that with an autistic child there are issues every day. Every day. Some days may be very mild and not a big deal. Others may exhaust. And some others may crush your soul. There's lots of emotions, good and bad, and there's lots of things you must remember and think about. It's not organized or predictable, necessarily. I could (and sometimes do) go further than this with specifics.

I also share the positive stuff. I mean, I have two great kids! One is just more fragile and is more work.

Your take, please?

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